Physical Therapy Publications
Document Type
Article
Publication Date
10-1-2017
Journal
Disability and Rehabilitation
Volume
39
Issue
21
First Page
2228
Last Page
2235
URL with Digital Object Identifier
https://doi.org/10.1080/09638288.2016.1219402
Abstract
We share our experiences as academic physical therapists and parents of young people with cerebral palsy working together as a research team, describe and critically review how our working relationship has evolved and propose further enhancements to realize our shared vision. This manuscript is informed by a call for “family-centered research,” transcripts of face-to-face meetings held over a period of 11/2 days, the INVOLVE document and our experiences over almost a decade, as well as other related literature. Authentic collaborative research partnerships between academic researchers and parents embodying trust, mutual respect and shared social responsibility take time and effort to develop and sustain. Rehabilitation research is more meaningful and may be more impactful when strong collaborative partnerships between researchers and health service users are in place.
Notes
“This is an Accepted Manuscript of an article published by Taylor & Francis in Disability and Rehabilitation on October 1, 2017, available online: http://www.tandfonline.com/10.1080/09638288.2016.1219402"
The On Track Study was funded by: The Canadian Institutes of Health Research, MOP-119276 and The Patient-Centered Outcomes Research Institute, CE-12-11-5321.