The Turkish version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)

Authors

Erkan Demirkaya, Western UniversityFollow
Seza OzenFollow
Betul SozeriFollow
Nuray Aktay AyazFollow
Ozgur KasapcopurFollow
Erbil UnsalFollow
Balahan Bora MakayFollow
Kenan BarutFollow
Berna Eren FidanciFollow
Dogan SimsekFollow
Mustafa CakanFollow
Alessandro ConsolaroFollow
Francesca BovisFollow
Nicolino RupertoFollow

Document Type

Article

Publication Date

4-2018

Journal

Rheumatology International

Volume

38

Issue

Supplement 1

First Page

395

Last Page

402

URL with Digital Object Identifier

https://doi.org/10.1007/s00296-018-3982-8

Abstract

The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Turkish language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the 3 Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability, and construct validity (convergent and discriminant validity). A total of 466 JIA patients (13.7% systemic, 40.6% oligoarticular, 22.5% RF negative poly-arthritis, and 23.2% other categories) and 93 healthy children were enrolled in four centres. The JAMAR components discriminated well-healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the Turkish version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.

Notes

Article available at Rheumatology International, Vol. 38(Supplement 1).

https://doi.org/10.1007/s00296-018-3982-8

© The Author(s) 2018

Creative Commons License

This work is licensed under a Creative Commons Attribution 4.0 License.