Electronic Thesis and Dissertation Repository


Master of Science


Communication Sciences and Disorders


Dr. Allyson Dykstra


The purpose of this study was to explore the consequences of oromandibular dystonia (OMD) on communicative participation from the insider’s perspective. Qualitative research methods were used to obtain a self-reported account of the experience of living with OMD. Eight individuals with OMD and dysarthria participated in face-to-face phenomenological interviews. Interviews were transcribed from audio recordings and coded using coding software. The codes were then grouped into larger thematic categories based on salience. Results showed that communicative participation is affected by multiple physical, social, and emotional factors caused by OMD. Furthermore, OMD can have significant effects on an individual’s job, family, and social life. Lastly, strategies and coping mechanisms used by participants were explored. This study will add to very sparse literature on OMD and will help to reveal the complexity of living with this disorder.