Date of Award


Degree Type


Degree Name

Master of Education




Dr. Jacqueline Specht

Second Advisor

Dr. Robert Sandieson


Tuberous Sclerosis Complex (TSC) is a rare genetic disorder that causes tumours

to grow throughout the body. This can have serious consequences for individuals affected throughout their lifetime. People with TSC are affected by this disorder in terms of their medical health, cognitive and behavioural functioning. There is currently no research in the literature addressing the educational profile, needs, or cognitive profile from an educational framework of children with TSC. As children with TSC move through the education system, a number of issues can potentially affect their educational success. This qualitative research study examined the educational impacts of TSC on children currently in the education system. The aim of the study was to gain an understanding of practices that are facilitating success in these children’s educational experience and specific deficits commonly experienced. In depth, semi-structured interviews were carried out with 10 parents of children with TSC (in Grades 1 thru 8), and 6 of their teachers/educational assistants (EAs). Academic, social and medical findings and their implications are discussed.



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